eISSN: 2299-0046
ISSN: 1642-395X
Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii
Current issue Archive Manuscripts accepted About the journal Editorial board Reviewers Abstracting and indexing Subscription Contact Instructions for authors
SCImago Journal & Country Rank
6/2021
vol. 38
 
Share:
Share:
more
 
 
abstract:
Original paper

Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version

Piotr K. Krajewski
1
,
Łukasz Matusiak
1
,
Marta Szepietowska
2
,
Julia E. Rymaszewska
2
,
Gregor B.E. Jemec
3
,
Joslyn S. Kirby
4, 5
,
Jacek C. Szepietowski
1

1.
Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Wroclaw, Poland
2.
Student Research Group of Experimental Dermatology, Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Wroclaw, Poland
3.
Department of Dermatology, Zealand University Hospital, Roskilde; Health Sciences Faculty, University of Copenhagen, Denmark
4.
Department of Dermatology, Penn State Health Milton S. Hershey Medical Center, Hershey, PA, USA
5.
European Reference Network for Rare and Complex Diseases of the Skin (ERN-Skin) member
Adv Dermatol Allergol 2021; XXXVIII (6): 967–972
Online publish date: 2020/07/14
View full text
Get citation
ENW
EndNote
BIB
JabRef, Mendeley
RIS
Papers, Reference Manager, RefWorks, Zotero
AMA
APA
Chicago
Harvard
MLA
Vancouver
 
Introduction
Hidradenitis suppurativa (HS) is a chronic, inflammatory and painful cutaneous disease which often has a negative influence on patients’ quality of life. Dermatology-specific instruments, such as Dermatology Life Quality Index and Skindex, are commonly used to evaluate HS patients’ quality of life. However, due to the lack of specific questions, these scales may not be adequate and may not reflect the real problem.

Aim
To translate and validate the Polish version of a newly created HS-specific questionnaire – Hidradenitis Suppurativa Quality of Life (HiSQOL).

Material and methods
A forward and backward translation was conducted from the original English version of the questionnaire to Polish language ac-cording to international standards. The validation was performed on a group of 30 patients suffering from HS, who completed the questionnaire twice with a 4–5 days’ interval.

Results
The Polish version of HiSQOL questionnaire showed a very good internal consistency (Cronbach  coefficient was 0.96 for total score). Excellent reproducibility with the intraclass correlation coefficient (ICC) of 0.97 was demonstrated.

Conclusions
The Polish version of HiSQOL questionnaire has high internal reliability, validity and reproducibility. It can be used as a tool to assess health-related quality of life in the patients suffering from hidradenitis suppurativa.

keywords:

hidradenitis suppurativa, quality of life, questionnaire

Quick links
© 2022 Termedia Sp. z o.o. All rights reserved.
Developed by Bentus.