PL RU

32ND EUROPEAN ACADEMY OF CHILDHOOD DISABILITY ANNUAL MEETING 2020

 

POZNAN, POLAND, 25.11.2020 - 28.11.2020

32ND EUROPEAN ACADEMY OF CHILDHOOD DISABILITY ANNUAL MEETING 2020

 

POZNAN, POLAND, 25.11.2020 - 28.11.2020

PROGRAM
LIST OF E-POSTER PRESENTATIONS

CONFERENCE PROGRAM UPDATE FOR MARCH 09TH.
PROGRAM COULD BE CHANGE OR MODIFY.
 
15
June
Monday
Live Surgery Webinar
12:00–15:00
Transatlantic Live Surgery Webinar
Minimally invasive surgery in cerebral palsy - live surgery broadcast


25
November
Wednesday
11:00–13:00

The Global Professional Education Committee (GPEC) is a sub-committee of the International Alliance of Academies of Childhood Disability (IAACD) (e.g., IACP).
14:00–17:00
The Global Professional Education Committee (GPEC) is a sub-committee of the International Alliance of Academies of Childhood Disability (IAACD) (e.g., IACP).
18:00–20:00
GET TOGETHER MEETING


26
November
Thursday
 
MUSCULOSKELETAL DISORDERS
7:30–8:30
Breakfast MS
00064
Early muscle health in cerebral palsy: Moving towards an Integrated Functional Approach
Sian Wililams, Dayna Pool, N. Susan Stott
9:00–9:45
OPENING CEREMONY
Lifespan development with a neurodevelopmental disorder
Bernard Dan

Lifespan development, beyond the traditional confines of childhood development, explores how humans change and grow from conception to their very last day. In his talk Bernard Dan will address developmental opportunities and challenges throughout the lifespan among those who live with a neurodevelopmental disorder.
 
9:45–10:15
Keynotes Lectures
Changing perspective on Spinal Muscular Atrophy: from pediatric to adult care
Anna Kostera Pruszczyk

Proximal SMA is the most frequent autosomal recessive neuromuscular disease in children. Mutations of SMN1 gene lead to a spectrum of clinical symptoms ranging from severe-infantile onset forms to asymptomatic cases. Recent introduction of breakthrough treatment change the natural course of SMA and call for adherence to multidisciplinary care recommendations. Wide variability of medical treatment will improve survival and reduce disability. We are witnessing the functional improvement in the adults as well.
 
10:15–10:45
Keynotes Lectures
Opening doors to meaningful life participation
Beata Batorowicz

There is a pressing need for interventions focusing on the social participation of children and young people with disabilities. Interdisciplinary approaches and current technology offer diverse methods to ‘open doors’ to engage the children, especially those with severe motor and communication impairments, in meaningful life activities, leading to identifying and fulfilling their life aspirations. I will discuss the many benefits realized through literacy, communication and technology-enabled participation with relevance to health outcomes.
 
10:45–11:15
COFFEE BREAK+ POSTER SESSION
11:15–12:45
IC
00314
Has there been a change in the use of Botulinum Toxin Injection as part of the management of Spasticity in Cerebral Palsy? A review of service 2015 - 2019.
Amanda O'Sullivan, Denise McDonald, Adrienne Gillen
12:45–13:45
TBD
13:45–14:30
Lunch break
14:30–15:00
Keynotes Lectures
Not CP but HSP
Mauricio Delgado

Hereditary spastic paraparesis (HSP) is a rare group of heterogeneous genetic disorders characterized by progressive weakness, spasticity and joint contractures of the lower limbs. Childhood-onset HSP is often initially misdiagnosed and managed as diplegic cerebral palsy (CP) until the progressive nature of the disease presents over time. The aim of this presentation will be to discuss clinical features, natural history, and diagnostic workup including genetics and compare and contrast these features with diplegic CP.
 
15:00–15:30
Keynotes Lectures
A view from both sides
Henry Chambers
 
15:35–16:50
IC
00018
Therapeutic Interventions for Young Children with Hypotonia Young Children with Hypotonia?
Virginia Paleg, Elisabet Rodby-Bousquet
16:50–18:00
18:00–19:45
EACD Annual General Meeting
20:30–21:30
Welcome to Poznan and Wielkopolska Region Reception
 
IC = Instructional Courses MS = Mini-Symposium OC = Oral Communications


27
November
Friday
 
MUSCULOSKELETAL DISORDERS
7:30–8:30
Breakfast MS
00270
From childhood to adulthood with cerebral palsy: CPUP – a multi-professional surveillance programme through the lifespan
Elisabet Rodby-Bousquet, Piotr Michno, Erika Cloodt, Jenny Hedberg, Johanna Pettersson
8:30–9:00
Keynotes Lectures
COMORBIDITIES PLENARY SESSIONS
Parents and transition: out of place, or put in the wrong place?
Bryony Beresford

The place, function and role of parents in the lives of young people and young adults with impairments is subject to much debate but a poorly understood. Whilst the notion of emerging adulthood has usefully challenged existing understandings of ‘independence’, the general view is that less involvement is ‘better’, or certainly that parents’ role and function should change, unless they relieve the state of responsibilities for care and support. However, the issue is much more nuanced than this and needs to be considered through a number of different evidence-informed lenses. These include sociodemographic understandings of trajectories of parental role in adult children’s lives, developments in social capital during adolescence and young adulthood, and the way the type of impairment influences and affects transition and meanings of adulthood. Together, such lenses allow us to evaluate whether models of service delivery and practice fit with young people’s and young adults’ wider lives, and to further refine what we mean by person- and family-centred transition practice.
 
9:00–9:30
Keynotes Lectures
COMORBIDITIES PLENARY SESSIONS
Feeding back to feed forward: How do we use lessons from adults’ experiences to impact children and families?
Peter Rosenbaum

We are increasingly aware of, and concerned about, the adult lives of (former) children with child-onset impairments. To truly address a life-course approach to our work, and honour this year’s EACD theme "From childhood to adulthood with disability", we need to understand the issues and perspectives of the lives of young adults who have grown up with impairments, and feed those ideas 'back' to parents raising, and to people working with, infants and young kids with impairments. Feeding forward (two ‘F-words’!) will enable us to begin to address ‘Future’ from a very early stage of the child’s and family’s life-course journey.
 
9:30–10:45
Mac Keith press & EACD
The forum : the future of childhood disability
10:45–11:15
COFFEE BREAK+ POSTER SESSION
11:15–12:45
12:45–13:15
Keynotes Lectures
TECHNOLOGICAL SUPPORT OF THE REHABILITATION PROCESS PLENARY SESSIONS
Technology for assessment and therapy in pediatric rehabilitation
Jaap Harlaar

Technological innovations are the source of a perpetual re-creation of our world. In pediatric rehabilitation the precise and objective assessment of diseases and impairments can be supported by technology based measures; but do they serve better decisions ? Advanced technologies also enable new ways to deliver therapy, from serious gaming to easing therapist labor; but how do they contribute to the quality of life?
 
13:15–13:45
Keynotes Lectures
TECHNOLOGICAL SUPPORT OF THE REHABILITATION PROCESS PLENARY SESSIONS
Robots to the Rescue
Is the future now??

Deborah Gaebler-Spira

Robotics is a branch of technology that deals with the design, construction and operation of robots as well as computer systems for the control, sensory feedback and information processing. Robots can take on any form but some are made to resemble humans in appearance. Robots attempt to replicate functions such as walking, lifting, speech, cognition. This lecture will highlight 3 uses of robotics throughout the ICF paradigm.
 
13:45–14:45
Lunch break
14:45–16:00
16:00–16:30
Coffee Break + poster session
16:30–18:00
IC
00453
An ICF-CY based conceptual approach: Activity and Participation Focused Individualized Therapy (APFIT) after Botulinum Toxin injection in children with cerebral palsy
Kübra Seyhan, Mintaze Kerem Günel, Ece Ünlü Akyüz
19:30–23:00
Networking dinner
 
IC = Instructional Courses MS = Mini-Symposium OC = Oral Communications
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