eISSN: 1644-4124
ISSN: 1426-3912
Central European Journal of Immunology
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3-4/2005
vol. 30
 
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abstract:

The ESID online clinical and research database

Viviane Knerr
,
Benjamin Gathmann
,
Anne-Marie Eades-Perner
,
Gerhard Kindle
,
Dominic Veit
,
David Guzman
,
Bodo Grimbacher

(Centr Eur J Immunol 2005; 30 (3-4): 99-103)
Online publish date: 2006/10/10
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The ESID online database has been set up by the European Society for Immunodeficiencies in order to provide detailed long term documentation of data about patients with primary immunodeficiencies. Its aim is to improve diagnosis, therapy and prognosis of PID patients by enabling large genetic and therapeutic trials. The database is capable of collecting therapy and laboratory data on almost 180 different primary immunodeficiencies with a common core dataset and additionally offers large disease-specific data models for a number of diseases which expands constantly. The project involves numerous documenting centres throughout Europe and is being supported by the European Union and pharmaceutical companies. One of the advantages of the system is the easy handling which does not require technical premises on site. The database can be accessed online and is password protected.
keywords:

primary immunodeficiency, database, online, research, European, clinical

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